Tuesday, January 20, 2015

My life has been a bit of a whirlwind adventure the past two months. Trying to juggle the busiest time of year at work, a new relationship, the holidays, vacations, and misbehaving Crohn's, I feel like I finally now have time to breathe or at least time for a quick update.

My liver is finally behaving, and I am finally tapering off prednisone. On the other hand, my Crohn's has never been more active, and after my latest colonoscopy, we are stuck in a crossroads of where to go to next. I am following up with my GI on Thursday, to discuss treatment options. At this time, he feels that since I have failed Humira, that other anti-TNF drugs will not prove to be that great of help. I wouldn't mind trying one of the others such as Simponi or Cimiza, but trust my GIs decision of where to go next. We have been stuck in this circle for a few months I feel, but now with the tapering off of the prednisone, am feeling the full effects of Humira not working no where near as well as it once did. This was my worst colonoscopy to date, even with being on Humira, azathioprine, and prednisone. There should be no inflammation, no evidence of disease. Hopefully on Thursday I will have a treatment plan, of where to go next.

I am finally beginning to taper my prednisone. I have been on prednisone since May, and its finally time to slowly decrease. My bones are worse for the wear from it though. Three weeks ago, I feel, slipping on black ice, and fractured my arm. This combined with a DEXA scan showing severe osteopenia has also moved my doctors to reduce the steroids.



3 comments:

  1. Im praying for you girl.. Hang in there.

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