Today, I took two naps totaling for over six hours. Not one meal stayed down, and I just am wiped out.

I feel like Entocort is the biggest waste of time. After 3.5 weeks I have noticed no real improvement. At about week two I had a little relief but it subsided quickly. Both my new doctor and I are trying everything possible to avoid prednisone, since I have had miserable experiences with it in the past. Since my crohn's is mainly in my ileum and Entocort is specifically targeted towards the ileum we thought we would give it a try. Since it hasn't worked, the typical next course of action would be prednisone, but I'm really pushing for Humira, Remicade or another biologic.i know they come with many side effects, but I absolutely refuse to subject my body to prednisone. The weight gain, acne, joint pain are bad enough as it is, but prednisone also triggers many psychological side effects in me, perpetuating my anxiety and PTSD through the roof. Monday can't come soon enough. I am really trying to follow my training schedule for upcoming runs, but right now with zero energy, and crazy bathroom issues, I've had to take a few steps back, which is so frustrating. Fingers crossed

Well, over six months later and still tring to navigate this miserable disease. Current meds for Crohn's include: pentasa, omeprazole, Bentyl and entocort ec. I just switched to a new doc, and went through a complete blood work up, as well as an MRI enterography. The past month or so has been complete hell. The inflammation has spread, from my joints acting up (hello every joint I've abused in the past decade) to inflammation in my eyes, making it harder to see at night, and just felling like crap. I don't know if it's from the Crohn's or the entocort, but I also feel like marshmallow man, being so swollen and puffy. Pentasa worked wonders for me at first, but the pain and some of the n+d has come back and I can't deal with it. I also am sick and tired of welling feeling so tired and run down. I've been averaging over 11+ hours of sleep a night and still am exhausted. I haven't felt this bad in a long time and am crossing my fingers for a better way to treat this.