Tuesday, February 25, 2014

day 6

Day six, after first loading dose of Humira. In the past week, I've lost five pounds, and am in one of the two worst flares of this illness so far. I'm hoping that I can survive until day 15, and get two more injections in me, before this has a chance to destroy my body any further.

Besides the typical GI symptoms of a flare up, my arthritis also typically becomes much more severe.  This time around my hands and hips are most affected. Previously, my hips, ankles and knees were my hot spots. My hands and fingers bothered me last time, but not to this extent. I'm thinking it's just due to the fact that I sit at a computer 7 hours a day, with desk work.

I also am staying vigilant about my weight. Previous to my diagnosis, from 17 through college, I maintained 140 lbs, without any awareness. I could eat, drink, exercise and maintain without any thought. During my first severe flare, I dropped to 117 in under two months. Being close to 5'8, I was so sickly. I was out on Pentasa, then Asacol HD, then Lialda with no help. I then added in Entocort, with a course of Prednisone, and my weight skyrocketed to 187. I started to experience drastic side effects, and tapered my way off. At the time, I was also extremely frustrated with my physician for he didn't agree with my decision to stop steroids. Within three months, I dropped 16 pounds. It's been over a year, and I maintained at 167-168, medication free. I was in the school of thought that hey, I could work out more and watch what I ate to try to lose, but maybe hold off on it. I was honestly afraid of choosing to lose weight. Knowing what my body was capable on on its own, I didn't mind hanging on to those extra 25 lbs as a buffer space.

Here I am, closing in on 162. I'm not paranoid at this point, but will be monitoring it. It's abnormal for me to drop five pounds so quick. I'm hoping that soon enough, Humira will catch up to my disease. Would I love to be 140 again? Absolutely but not in this fashion. My body can't take it, and is struggling to survive as it is.

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